The National Hemophilia Foundation (NHF) and McMaster University recently announced the publication of an evidence-based clinical practice guideline on Care Models for Hemophilia Management. The NHF-McMaster Guideline was developed to identify best practices in hemophilia care delivery to optimize outcomes for people living with hemophilia across the United States.
The key guideline recommendations are:
- The integrated care model should be used over non-integrated care models for patients with hemophilia (conditional recommendation, moderate certainty in the evidence). For hemophilia patients with inhibitors, and those at high risk for inhibitor development, the same recommendation was graded as strong, with moderate certainty in the evidence.
- A hematologist, a specialized hemophilia nurse, a physical therapist, a social worker, and round-the-clock access to a specialized coagulation laboratory should be part of the integrated care team, over an integrated care team that does not include all of these components (conditional recommendation, very low certainty in the evidence).
Source: Pai M, Key NS, Skinner M, et al. National Hemophilia Foundation-McMaster University guideline on care models for hemophilia management. 2016;22:1-50.